Lead: Utrecht University December 2024

D2.1 Systematic review report and updates V1

D2.1 lays the first stone of the Knowledge Warehouse. Led by Utrecht University, it reports an umbrella review of the scientific evidence on patient-generated health data (PGHD) across disease areas, searching four databases and screening more than 12,000 records through the project’s crowdsourced Screenathon method to arrive at 283 papers within scope. The review also names what is missing: patient-reported experience measures, patient preference information and evidence on how PGHD improves medical device design remain thinly covered, and those gaps set the agenda for the work that follows.

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