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Slovensko Making Patient-Generated Health Data Work for Better Healthcare.
Every day patients generate valuable health information. Yet much of it never reaches clinical decision-making. IMPROVE is changing that.
IHI-IMPROVE develop an evidence-based and actual framework to effectively leverage the added value of people-centred integrated healthcare solutions, using predominantly Patient-Reported Outcome Measures (PROMs), Patient Preference Information (PPI), Patient-Reported Experience Measures (PREMs), and other Patient-Generated Health Data (PGHD).
IMPROVE brings together 26 partners from 10 different countries to make healthcare provision more effective and efficient by putting the patient at the centre of the healthcare process.
OUR CHALLENGES.
Every patient generates data. Very little of it improves healthcare.
Healthcare is becoming increasingly digital, yet one of its greatest untapped resources remains underused: Patient-Generated Health Data (PGHD)
However, these data are often fragmented, difficult to access, and rarely integrated into routine healthcare decision-making
IMPROVE addresses this challenge by transforming patient-generated health data into actionable knowledge - supporting better clinical decisions, more effective healthcare innovation, and truly value-based healthcare across Europe.
OUR APPROACH TO BETTER HEALTHCARE.
IMPROVE will establish a platform for gathering and exchanging patient-generated health data (PGHD)
Different concept of gathering and exchanging PGHD will be tested with the help of nine case studies from five different disease areas
The IMPROVE Knowledge Warehouse transforms fragmented evidence into accessible knowledge
The IMPROVE Toolbox helps stakeholders translate research into practice.
THE LIVINGLAB.
Innovation matters only when it works in real hospitals.
Different concept of gathering and exchanging PGHD will be tested with the help of nine case studies from five different disease areas in six different countries.
Prostate Cancer (PMS)
Systems for automated radiotherapy trial Quality Assurance applied to prostate cancer. Lead: Philips Medical Systems, The Netherlands.
Cervical Cancer (PMS)
Multicentre quantitative imaging biomarkers to harness outcome parameters relevant for cervical cancer patients. Lead: Philips Medical Systems, The Netherlands.
Head and Neck Cancer (UDUS)
The Head and Neck Cancer use case covers the full spectrum of Head and Neck Squamous Cell Carcinoma (HNSCC) patients and engages multiple stakeholders to assess the implementation and value of patient-generated health data in routine clinical practice. Lead: Heinrich Heine University Dusseldorf.
Breast Cancer (DEDA)
The Breast Cancer Use Case focuses on the systematic integration of Patient-Generated Health Data, with particular reference to Patient-Reported Outcome Measures, Patient-Reported Experience Measures and Patient Preference Information, into the care pathway of patients with early-stage breast cancer within the Apulia Regional Oncology Network. Lead: Dedalus Italia.
Macular Degeneration (IER)
Age-related macular degeneration can result in significantly decreased vision, subsequently impacting a patient’s independence with activities of daily living, social relationships, financial security, and general mental well-being. IER, ROCHE, and EYE intend to apply PGHD with wet MD in a real-world clinical setting. The aims are to understand the experience and motivation of patients in relation to age, sex, level of vision, and management. Lead: Institute for Economic Research, Slovenia.
Cardiovascular (IER)
Value-Based Healthcare framework for patients with chronic heart failure and coronary artery disease. The objective of this case study is to establish a Value-Based Healthcare (VBHC) framework for cardiovascular patients in Slovenia, with a specific focus on two diagnosis groups: heart failure (HF) and coronary artery disease (CAD).
Severe aortic stenosis (MDT)
This use case focuses on patients with severe aortic stenosis undergoing Transcatheter Aortic Valve Implantation (TAVI) in the Interventional Cardiology Department at Vall d’Hebron University Hospital in Barcelona. It aims to advance the care pathway digitalization through the implementation and validation of a remote patient monitoring platform that improves the continuity of care, supports clinical decision-making, and empowers patients before and after the intervention. Lead: Medtronic Iberica.
Multiple Sclerosis (FISM)
Value-Based Healthcare (VBHC) framework for Multiple Sclerosis (MS) rehabilitation. The objective of this case study is to create the VBHC framework for multiple sclerosis subjects, in particular focused on a target population of young patients (≤ 40 years old) with a relapsing remitting disease course or progressive disease course. Lead: Fondazione Italia Sclerosi Multipla.
Chronic Rhinosinusitis (UDUS)
The topic of Chronic Inflammation IHI IMPROVE Case Study focuses on Chronic Rhinosinusitis (CRS). CRS is a very widespread disease affecting more than 10 % of the population in Europe. Broad evaluation should be performed not only in study situations but in real world patient treatment. Applying this use case faces the whole spectrum of CRS patients as well as different kinds of stakeholders. Lead: Heinrich Heine University Dusseldorf.
KNOWLEDGE WAREHOUSE AND SCREENATHON.
Evidence becomes valuable only when it is accessible.
Scientific evidence is most valuable when it can be found, understood, and applied. The IMPROVE Knowledge Warehouse and Screenathon identify, evaluate, and organise digital healthcare solutions, transforming fragmented evidence into accessible knowledge that supports innovation and better healthcare decisions.
THE PLATFORM.
Data become knowledge when they support decisions.
The IMPROVE Platform connects patient-generated health data with clinical evidence and validated knowledge. Through interoperable technologies and intuitive decision-support tools, it transforms complex data into actionable insights for clinicians, researchers, policymakers, industry, and patients.
THE TOOLBOX.
Innovation creates impact only when stakeholders can use it.
The IMPROVE Toolbox helps stakeholders translate research into practice. It provides practical methods, guidance, and implementation resources that support the adoption of patient-generated health data and value-based healthcare across diverse healthcare settings.
MEDIA AND RESSOURCES
Videos
Infographics
Newsletter
Publications
Coordinator:
Universidad Politecnica de Madrid
Calle Ramiro de Maeztu 7
Edificion Rectorado
Madrid 28040, Spain
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This project is supported by the Innovative Health Initiative Joint Undertaking (IHI JU) under grant agreement No. 101132847. The JU receives support from the European Union’s Horizon Europe research and innovation programme and COCIR, EFPIA, EuropaBio, MedTech Europe, Vaccines Europe, and the contributing partners
